At DDH UK we work with people and organisations around the world who are all working hard to get hip dysplasia on the map.
We have put together a collection of blogs, social media pages, resources and websites that we have found useful and hope you will too.
Books
A Guide for Adults with Hip Dysplasia: A Patient’s Guide, Sophie West & Denise Sutherland
Cast Life A Parent’s Guide to DDH, Natalie Trice
Hope the Hip Hippo, Julie Beattie, Gina Jay
Onward! Navigating Hip Dysplasia, PAO Surgery, and Beyond, Jennifer Lesea-Ame
The Happy Hips Guide To Teen & Young Adult Hip Dysplasia
Spica Warrior, Karen Kerr
Blogs
If you are looking for real information from real people there are so fantastic blogs out there:
abbysbilateralhipdysplasiastory.blogspot.co.uk
cuddlefairy.com
dramaticallyhip.com
emmaand3.com
hipbuddies.com
hip-baby.org
hiphiphoorayhips.blogspot.com.au
hiphipboo.wordpress.com
HippySoph.wordpress.com
hopethehiphippo.com
justbecauseilove.co.uk
livingwithhipdysplasia.wordpress.com
mummaplusthree.com
themummycode.wordpress.com
northernmum.com
onehipworld.blogspot.co.uk
thepaoproject.com
walkingwithlily.weebly.com
Car Seats
A specially adapted car seat for babies and infants in a spica cast can be purchased from the In-Car Safety Centre. You can find out more at incarsafetycentre.co.uk
Maxi-Cosi have adapted their Opal car seat for children in a spica cast. Full details can be seen on the Maxi-Cosi site here.
Clothing
Hip-Pose Ltd is a range for clothing specifically created for babies and toddlers being treated for hip dysplasia (DDH). The company is based in the UK but offer international delivery.
Pyjama Fairies is dedicated to helping kids feel more comfortable while in hospital by making beautiful, bespoke pyjamas and surgical gowns. Their garments are made from bright, fun fabrics and help relieve some of the fear children during a hospital stay.
Facebook Pages and Support
Children Facing Surgery or Spica Casts
DDH Support Worldwide
Healthy Hips Australia
Hip Dysplasia Awareness Group
Hip Dysplasia Baby
Hip Dysplasia Awareness Ireland
Hip Dysplasia Awareness/Hips Don’t Lie
Hip Dysplasia In Babies (clicky hips or CHD, DDH)
Hip Dysplasia, Total Hip Replacements & Hip & Knee Problems
Hip Hip Hooray DDH – Australia
www.hiphiphoorayddh.org
Twitter – @hiphiphoorayddh
Hip Kid Story
www.hipkidstory.com
Parents who have kids with DDH
Spica Warrior
Twitter @spicawarrior
There’s Nothing Hip About Hip Dysplasia
Organisations
International Hip Dysplasia Institute (IHDI) is really an amazing resource and at the forefront of DHH information.
Healthy Hips Australia is doing a great job of raising awareness of DDH in Australia and offering support.
Steps Charity is a national charity based in the UK supporting children and adults affected by a lower limb conditions including DDH.
www.boneandjoint.org.uk
Spica Chairs
Smirthwaite
www.smirthwaite.co.uk
Support
Monkey Wellbeing offers excellent activities, books and support when it comes to going into hospital.