At DDH UK we know only too well that a hip dysplasia diagnosis can not only create many new emotions but also throw up a whole host of questions.
Our closed Facebook group DDH UK Support Group is open 24/7 and is growing everyday.
Whilst we CANNOT and DO NOT offer the medical advice and opinion that must come from a clinician, we are a caring, kind community of parents, patients and health professionals who are on hand to help anyone on their journey towards healthy hips.
With admins in the UK, Australia and America, there is always someone on hand to listening, offer suggestions and just make life feel a little bit better and easier.
From details about car seats and buggies, books to loan and good luck cards, to the best clothes to use with a spica cast and what to take into hospital, all of this and more is available from the DDH UK Support Group members and team.
‘With a DDH diagnosis for my daughter I had no idea who I could talk that would truly understand. DDH UK has been there and without their support I would feel lost have no one with experience to talk to. They prepared me for the pre op with my daughter’s surgeon which I wouldn’t have had half the questions or knowledge I have without it.’
‘It’s great to be part of a community that knows how you feel about your child’s condition and gets why you feel the way you do! Also wonderful to know you are not alone!’
‘This is great place to get so much support and advice day and night. I felt very alone for the first few weeks until I found DDH uk support group. It a lovely way to meet new people at the monthly meetings. Feeling like people care.’
‘Thank you for being there when no one else understood.’
‘Having people who know what you are going through when so many don’t understand is a real lifeline. Even though my girls are through the majority of treatment for now, I still need the support of others who understand the ongoing worries and issues and concerns about what the future holds, and DDH UK provides exactly that, and more.’
If you would like to be part of this community, join today and we can help bridge that gap of support.
Team DDH UK.