At DDH UK we work with people and organisations around the world who are all working hard to get hip dysplasia on the map.
We have put together a collection of blogs, social media pages, resources and websites that we have found useful and hope you will too.
Books
A Guide for Adults with Hip Dysplasia: A Patient’s Guide
Cast Life A Parent’s Guide to DDH
Onward! Navigating Hip Dysplasia, PAO Surgery, and Beyond.
The Happy Hips Guide To Teen & Young Adult Hip Dysplasia
Blogs
If you are looking for real information from real people there are so fantastic blogs out there:
abbysbilateralhipdysplasiastory.blogspot.co.uk
hiphiphoorayhips.blogspot.com.au
livingwithhipdysplasia.wordpress.com
Car Seats
A specially adapted car seat for babies and infants in a spica cast can be purchased from the In-Car Safety Centre. You can find out more at incarsafetycentre.co.uk
Maxi-Cosi have adapted their Opal car seat for children in a spica cast. Full details can be seen on the Maxi-Cosi site here.
Clothing
Hip-Pose Ltd is a range for clothing specifically created for babies and toddlers being treated for hip dysplasia (DDH). The company is based in the UK but offer international delivery.
Pyjama Fairies is dedicated to helping kids feel more comfortable while in hospital by making beautiful, bespoke pyjamas and surgical gowns. Their garments are made from bright, fun fabrics and help relieve some of the fear children during a hospital stay.
Facebook Pages and Support
Children Facing Surgery or Spica Casts
www.facebook.com/groups/Hiptoddlers/
DDH Support Worldwide
www.facebook.com/groups/ddhsupportworldwide
Healthy Hips Australia
www.facebook.com/healthyhipsaustralia
Hip Dysplasia Awareness Group
www.facebook.com/groups/11256957586
Hip Dysplasia Baby
www.facebook.com/HipDysplasiaBaby
Hip Dysplasia Awareness Ireland
www.facebook.com/pages/Developmental-Hip-Dysplasia-awareness-Ireland
Hip Dysplasia Awareness/Hips Don’t Lie
www.facebook.com/hipchica
Hip Dysplasia In Babies (clicky hips or CHD, DDH)
www.facebook.com/groups/HipDysplasiaInBabies
Hip Dysplasia, Total Hip Replacements & Hip & Knee Problems
www.facebook.com/groups/111645505661430
Hip Hip Hooray DDH – Australia
www.facebook.com/hiphiphoorayddh
www.hiphiphoorayddh.org
Twitter – @hiphiphoorayddh
Hip Kid Story
www.facebook.com/hipkidstory
www.hipkidstory.com
Parents who have kids with DDH
www.facebook.com/groups/1547639968836619
Spica Warrior
www.facebook.com/pages/Spica-Warrior/1638707209742941
Twitter @spicawarrior
There’s Nothing Hip About Hip Dysplasia
www.facebook.com/TheresNothingHipAboutDysplasia
Organisations
International Hip Dysplasia Institute (IHDI) is really an amazing resource and at the forefront of DHH information.
Healthy Hips Australia is doing a great job of raising awareness of DDH in Australia and offering support.
Steps Charity is a national charity based in the UK supporting children and adults affected by a lower limb conditions including DDH.
www.boneandjoint.org.uk
Spica Chairs
Smirthwaite
www.smirthwaite.co.uk
Support
Monkey Wellbeing offers excellent activities, books and support when it comes to going into hospital.