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DDH UK

Because Hips Matter

@DDHUK_

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DDH UK Resource Centre

At DDH UK we work with people and organisations around the world who are all working hard to get hip dysplasia on the map.

We have put together a collection of blogs, social media pages, resources and websites that we have found useful and hope you will too.

Books 

A Guide for Adults with Hip Dysplasia: A Patient’s Guide, Sophie West & Denise Sutherland

Cast Life A Parent’s Guide to DDH, Natalie Trice

Hope the Hip Hippo, Julie Beattie, Gina Jay

Onward! Navigating Hip Dysplasia, PAO Surgery, and  Beyond, Jennifer Lesea-Ame

The Happy Hips Guide To Teen & Young Adult Hip Dysplasia

Spica Warrior, Karen Kerr

Blogs

If you are looking for real information from real people there are so fantastic blogs out there:

abbysbilateralhipdysplasiastory.blogspot.co.uk

cuddlefairy.com

dramaticallyhip.com

emmaand3.com

hipbuddies.com

hip-baby.org

hiphiphoorayhips.blogspot.com.au

hiphipboo.wordpress.com

HippySoph.wordpress.com

hopethehiphippo.com

justbecauseilove.co.uk

livingwithhipdysplasia.wordpress.com

mummaplusthree.com

themummycode.wordpress.com

northernmum.com

onehipworld.blogspot.co.uk

thepaoproject.com

walkingwithlily.weebly.com

Car Seats 

A specially adapted car seat for babies and infants in a spica cast can be purchased from the In-Car Safety Centre. You can find out more at incarsafetycentre.co.uk

Maxi-Cosi have adapted their Opal car seat for children in a spica cast. Full details can be seen on the Maxi-Cosi site here.

Clothing 

Hip-Pose Ltd is a range for clothing specifically created for babies and toddlers being treated for hip dysplasia (DDH). The company is based in the UK but offer international delivery.

Pyjama Fairies is dedicated to helping kids feel more comfortable while in hospital by making beautiful, bespoke pyjamas and surgical gowns. Their garments are made from bright, fun fabrics and help relieve some of the fear children during a hospital stay.

Facebook Pages and Support

Children Facing Surgery or Spica Casts
www.facebook.com/groups/Hiptoddlers/

DDH Support Worldwide
www.facebook.com/groups/ddhsupportworldwide

Healthy Hips Australia
www.facebook.com/healthyhipsaustralia

Hip Dysplasia Awareness Group
www.facebook.com/groups/11256957586

Hip Dysplasia Baby
www.facebook.com/HipDysplasiaBaby

Hip Dysplasia Awareness Ireland
www.facebook.com/pages/Developmental-Hip-Dysplasia-awareness-Ireland

Hip Dysplasia Awareness/Hips Don’t Lie
www.facebook.com/hipchica

Hip Dysplasia In Babies (clicky hips or CHD, DDH)
www.facebook.com/groups/HipDysplasiaInBabies

Hip Dysplasia, Total Hip Replacements & Hip & Knee Problems
www.facebook.com/groups/111645505661430

Hip Hip Hooray DDH – Australia
www.facebook.com/hiphiphoorayddh
www.hiphiphoorayddh.org
Twitter – @hiphiphoorayddh

Hip Kid Story
www.facebook.com/hipkidstory
www.hipkidstory.com

Parents who have kids with DDH
www.facebook.com/groups/1547639968836619

Spica Warrior
www.facebook.com/pages/Spica-Warrior/1638707209742941
Twitter @spicawarrior

There’s Nothing Hip About Hip Dysplasia
www.facebook.com/TheresNothingHipAboutDysplasia

Organisations

International Hip Dysplasia Institute (IHDI) is really an amazing resource and at the forefront of DHH information.

Healthy Hips Australia is doing a great job of raising awareness of DDH in Australia and offering support.

Steps Charity is a national charity based in the UK supporting children and adults affected by a lower limb conditions including  DDH.

Medical Education Resources
Bone & Joint
www.boneandjoint.org.uk
British Orthopaedic Association
www.boa.ac.uk
European Paediatric Orthopaedic Society
www.epos.efort.org
Paediatric Orthopaedic Society of North America
www.posna.org

Spica Chairs 

Smirthwaite
www.smirthwaite.co.uk

Support

Monkey Wellbeing offers excellent activities, books and support when it comes to going into hospital.

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